I would like to update you on my Granddaughter Anayah-Israel. I finally got to meet her last year on my trip to the UK and had lots of cuddles.
A fundraiser was launched last year for her on-going treatment and go to Ireland for an intensive NAPA (Neurological and Physical Abilitation) program in September 22. Now the family are getting ready to go to Denver in June for Stem Cell therapy.
So far they have raised just over 13,000 pounds (22,000 CAD) to their goal of 50,000 GBP (83,000 CAD). With your help I have been able to donate $340 so far. With their upcoming trip to Denver I wanted to dye some more yarn and launch a new kit to raise more.
There are two new colours for Anayah's Rainbow Shawl, TooManyPixieBows and TooManySwampBows.
And a new kit, Anayah's Rainbow Cowl. This includes an limited edition DK mohair/ silk blend, only available in this kit with a (the yarn is now discontinued from the supplier!) In the kit is a 75g/ 225m/ 246y cake of silk/ merino sport weight and a 34g/ 70m/ 76y cake of DK mohair.
I will donate $10 for each Anayah's Rainbow Shawl kit and $15 for each Anayah's Rainbow Cowl kit sold.
I will also donate $20 for every Rainbow blanket kit sold.
Anayah hasn't been in hospital since October 2022!
Her new record for sitting is 1 minute and 15 seconds!
She has had her first day at Nursery.
She does Hydro Therapy every week.
And is going to Conductive Education twice a week.
She's also been working on mouth closure with an I-Qoro oral device through her private speech and language therapist, and is starting to be able to express herself with smiles.. just look at her smile!
From Anayah-Israel Just4Children Fundraiser page:
Hello! My name is Anayah-Israel, but you can call me ‘Biscuit’. I’m 2 years old and I live with my Mummy; Sarah, my Daddy; Deji and baby brother; Judah, in Nottingham.
I’m very very very, VERY strong because when I was born, Mummy was bleeding out lots and lots and my heart stopped. The Doctors had to resuscitate me for 11 minutes to bring me back and help me to breathe. Not having oxygen at birth means that my brain got very very poorly and had a severe brain injury. This means that I find lots of different things quite difficult because my brain has to try and find new ways to do things and I need lots of help from my Mummy, Daddy and nurses.
I was in NICU (Neo-natal intensive care) for 34 days at the QMC hospital. The Doctor’s told Mummy and Daddy that I wouldn’t live see 4 days old, but I didn’t listen to them because I’m a WARRIOR and I tried so hard to be here… I plan to stay here!
The Doctor said that I suffered a very serious HIE (Hypoxic-Ischemic Encephalopathy) brain injury, which means that when I wasn’t getting enough oxygen, parts of my brain got very injured and don’t work as they should. The HIE means that Doctors now say I have Cerebral Palsy, epilepsy, CVI (Cortical Visual Impairment) and some hearing loss. BUT, Mummy also says I have Warrior-syndrome because I’m so strong and overcome!
Over the past years, I have spent 26 weeks in hospital with chest and lung infections, pneumonia, epilepsy and difficulties with my airway. If I get a cold it can be very dangerous for me, so Mummy has to work extra hard to keep me safe from germs. I always fight them off though! Mummy has had to give me CPR 3 times and I’ve had CPR a total of 8 times in my life. It is so scary because I can’t breathe and I go blue.
My Mummy and Daddy say I have expensive taste because they spent thousands and thousands of pounds on therapies like Physio, Speech and Language, Conductive Education, laser therapy, HBOT (Hyperbaric Oxygen Chamber therapy), PBM (Photo Bio Modulation therapy) and neuro-plasticity ABM movement therapy. Sadly, the NHS have minimal therapeutic hands-on involvement which I really, REALLY need. So as a family we’ve decided to try and fund raise for my on-going treatment and go Ireland for an intensive NAPA (Neurological and Physical Abilitation) programme (September 2022), Stem Cell therapy in America (early 2023) and for follow on ABM therapy, PBM and HBOT.
We’re now planning a huge Stem Cell therapy trip to America in June 2023 which will also include a 3 week therapy intensive with NAPA straight after treatment and continued physio, Speech and language, ABM, PBM and HBOT.
My new goals are to strengthen my core to aid sitting, intentional choices and independence and one of my most important goals is to develop my swallow and eating to protect my lungs and improve my breathing!
You can also donate directly here.
Links as follows:
Anayah's Rainbow Shawl Kit - $10 donation
Anayah's Rainbow Shawl Pattern - $7.50 donation
Rainbow Blanket Kit - $20 donation
Anayah's Rainbow Cowl Kit - $15 donation
Anayah's Rainbow Cowl Pattern - $5 donation
You can find out more about HIE here.
You can also donate directly here: Just4Children